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Questions about a tracheostomy
I just wanted to ask any users here how it is to have a tracheostomy. I have a feeding tube and while it is a massive improvement to choking, it is a big commitment. The tube site needs to be managed and there are going to be complications (Granulation tissue, pain, leakage and infectsions)...- Hammerheadzed
- Thread
- choking constipation diet eating feeding feeding tube food improvement pain problem questions tracheostomy wanted worry
- Replies: 12
- Forum: General discussion about ALS/MND
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Need some help on weight gain and stomach collapsing when I lie down
Hello everyone. So a bit of background for me. I had some issues swallowing for over a year. I had an EMG in Oct 2017 that indicated diffuse denervation. I thought it was multiple sclerosis at first, then Kennedy disease then oculopharyngeal muscular dystrophy due to wishing it wasn't ALS and...- Hammerheadzed
- Thread
- advice als bed breathing choking clinic constipation denervation diagnosis diet dysphagia emg food meals nausea neurologist oil problem progression sleep swallowing test wanted
- Replies: 2
- Forum: Newly diagnosed