Search results for query: *

I agree with you girls, but I really don’t know where else to turn. I deeply inside believe that I don’t have ALS since I’m suffering for that long, and am normal functioning truought the day. So i’m counting that maybe some of them seen some similar cases and know where to turn. I had blood...

Professor Pamela Shaw replied on my e-mail that it is nit possible for her to examine patients from the continent, only UK citizens...is that Utrecht hospital best on the continent? The best neurologist there is I think Leonard van der Berg. Since my problems are really unspecific I need...

Ofcourse I count UK and Ireland. I already contacted Utrecht, it is high on my “list”. I’ve heard of Sheffild with proffesor Pamela Shaw also...i just want to be sure that I go to best of best in diagnostic process...

Dear all, this year I decided that I will get a diagnosis of something no matter what. I have collected money and need recomendations. Please give me names of best neurologists in Europe. Thank you, kind regards!

Thank you Karen, I’m going to neuro next week, for annual exam, will ask her/him all the questions i have so far. For the last few days I also have problema taking deep breathes sometimes, so I need to adress that also. Thank you all for your patience.

Firstly, I want to appologise if I broke the rule posting another thread, but I can’t find my last one. I’m really in nuts end! My whole side is atrophying even more. Now my deltoid and back muscles on that side are smaller, and i have winged scapula-my GP said that, although it is really mild...

I will think of you and pray that something else come up!!! Or at least that your progression have some remmision for some longer time!!

Trust me I try so hard. For how long have you been losing your strenght? Is it located only in that arm, no shere else? My whole one side of body is affected from the begining, but i don’t have mesurable weakness. Thank you very much for answering my questions! You are so nice, yet you for now...

Well I’m still pretty scared, after all these years it seems like my atrophy has speed up. I think it could be from me beeing nervous and depressed. But I can’t help it, when i see changes in my muscles, I can’t be relaxed. Did they have another emg on you? What did they say about that one...

So how did the apointment go?