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  • Users: sjtom
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  1. S

    Question

    I don’t google because I’ve learned from this site that it’s bad to google bad info. Thanks for your time.
  2. S

    Question

    I understand and appreciate your response. Reason I asked is because I joking an online bfs support group. And well almost all members have body wide- Then they start to have bulber issues- I am assuming for the anxiety. But was just looking for a concrete answer on a topic that no one can seem...
  3. S

    Question

    Hi, I know I have been here before but I just have a quick question and I don’t want to google.... I have body wide fasics- for over a year, no weakness but feel like I have mouth throat pnd drip issues, constant phlegm. My question- when someone has bulber, and they have bodywide...
  4. S

    Still have concerns

    Ok, thank you. I’ve actually been off this site for a month. I found the bfs Facebook page and it is a blessing. My reg neuro was kinda bugged that I couldn’t get back to see the muscle neuro and like I said I had no where to turn. Thank you, you are very kind. Thank for all you do on this...
  5. S

    Still have concerns

    Hi, emg attached. No fibs but mups- just turning here because they are not available to discuss findings with me until June.... Thanks
  6. CC37144A-A746-4F79-8B59-4D8BE7328C44.jpg

    CC37144A-A746-4F79-8B59-4D8BE7328C44.jpg

  7. S

    Sorry for my grammar- I am twitching everywhere. I also have acid reflux that is new.

    Sorry for my grammar- I am twitching everywhere. I also have acid reflux that is new.
  8. S

    Hi, we have very similar symptoms. I am concerned with resonatory onset that is very rare. I am...

    Hi, we have very similar symptoms. I am concerned with resonatory onset that is very rare. I am reaching every where. Docs say I’m fine.
  9. S

    Still have concerns

    Ok thank you, I have to stay away from the internet. Read a lot of als patients have increased motor latency and that’s why often confused with Carple tunnel- but I am asssuming those patents also had band emgs. My emg said completely normal- crazy to me since the doctor was watching me twitch...
  10. S

    Still have concerns

    Hi, I just received my latest emg results. Again, doctors are pushing for the emg - they are trying to figure out symptoms. Emg has no fibs it psw- But it had increased median nerve motor latency. Does anyone know if that is a concern? I don’t have my follow up for 2 months. Thank you, Tom
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