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Thank you for your input! For the record, my GP has told me he doesn't know where else to go and said God bless you. I will respect your request and move on unless I receive an ALS diagnosis. Blessing to all who have taken the time to share opinions and knowledge!

I have a condition called MGUS which stands for monoclonal gamopathy of undertmined significance. My white bloods cell count and plateletts tend to be low. I was bein seen every 3 months for the first year or so but now onl yearly. MGU can often times be a harbiner of mutiple myloma (as well as...

It has been a few months since I last posted. My oringinal post was titled "Am I heade towards an ALS Diagnosis". I have had 3 EMG/NVC tests in the last 9 months and all were by different people(2 of the Nuero's specialize in MND a at the University of Cincinnati). All 3 studies were abnormal...

Thank you Niki

I have not posted in awhile and my original thread has clsoed(Am I headed Toward an ALS Diagnosis). How do I get back into it to post again? Thanks

Thank you so much for replying Atsugi! The explanation is very helpful.

I just received test results from my rhuemetologist that all of the testing of my muscle enzymes is normal. Does this then mean that the signals coming from the brain are not working properly?

My apologies for again posting but I really would like to ask one more time for your input. Since I last posted, muscel wasting in my neck/shoulders, legs and arms has worsened(my PCP noted wasting at my physical on Monday). My fingers are stiff /weak as are my ankles. Quads, buttock and hip...

I have noticeable muscle wasting in my neck/shoulders/arms. My Ololaryngologist noted that I have atrophy of the vocal cord and my voice is always raspy. Swallowing mostly ok but when I chew my left jaw seems to fatigue, Can move tongue but am beginning to slur words. Biting my lower left lip...

Atsui,affected and NikkiJ I thank you all for responding and also offer my apologies if I have offended you in any way!