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The provider for my trilogy asked if I have a case manager with my insurance (Medicare Advantage Plan). Can anyone offer information on this as to whether pals should go this route? Or how this even works? I wanted to ask in the forum before inquiring with the insurance people. Thanks for...

I researched the forum for information, but couldn't find anything specific to this topic. My coughing and choking started prior to my diagnosis last October. It was chronic. I have been using the cough assist machine since this past April. Over the last couple of weeks, my coughing has...

For some time now, my legs have not stopped "getting my attention." It's difficult to explain, but I thought I would try, and maybe find out if anyone else has experiences or ideas about what's happening. (I'll be at Clinic in early May and will certainly go into it with the personnel there.)...

Are there any forum users with experience in any of the clinics accessible to Georgians? We are considering moving to an area closest to a good clinic. Thanks for any information.

To the moderators and administrators: please delete this post if such is not allowed on the forum. Thanks. Does anyone else here attend the clinic in Augusta, Georgia? And if so, can you relate your experiences and/or offer suggestions if I am going to attend clinic there? As always, thanks!

I was so overwhelmed at my first clinic yesterday, that I forgot about asking the neuro about some numbers that he kept giving to the resident, as the neuro was examining me. If anyone can clarify or explain this, I would be very appreciative. I won't be seeing the neuro for a few weeks or I...

At Clinic today, I was told it is time for the cough assist machine and the trilogy machine. What should I expect and be prepared to do? I guess this is my first "big step" into the abyss and I am overwhelmed. Does anyone know if medicare advantage plans cover this? Will my husband and I be...

(Still trying to learn how to move around this site, so I hope my comments are in the correct forum.) I want to say Hello and how much I appreciate the depth of knowledge and the forthrightness that I read posted here. My diagnosis was last October, 2017, after spending about 18 months chasing...