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  • Users: LeelaaB
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  1. L

    Today was a good day

    I feel as though I have started coming to terms with the loss of my beautiful Mother. Doing the ALS walk for Mothers Day meant so much to me. I was very emotional all day but it helped to be surrounded by people who understood. One of the the hardest parts of being the sole caregiver to my mom...
  2. L

    Walking for Mothers Day

    This will be my first mothers day without a Mother. I will participate in the ALS walk in her honor. It will be just 3 months since she passed and not a day goes by that the memory of sitting in the hospital and having a DNR put in front of me to sign doesn't run through my mind. I miss her so...
  3. L

    LeelaaB’s mother

    Thank you all for your support. My mom did pass on Tuesday. I was holding her hand and the last words we said to each other were I love you. Then she went to sleep and passed 24 hours later. While my heart is broken and will never fully heal, I am at peace with her passing knowing she no longer...
  4. L

    Have I done all I can??

    Hello everyone. This is all very new to me even though I feel as though I am getting a crash course in ALS care. My beautiful mother was diagnosed with ALS in October. She is 77 and lives with me. Her progression has been so fast I am having a hard time keeping up with all she needs. I have...
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