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  1. R

    Question Regarding FALS

    I believe it is possibly one of those C9 trials that she may enter if tested positive for C9 because they told her she cant start it until October 2018 i believe. She also mentioned something about a stem cell trial. I figured that knowing the grandmothers genetic makeup would help in finding...
  2. R

    Question Regarding FALS

    Just to give me a bit of relief, would you know how close they are to curing the C9 variation? by the time my husband is of the age his family members were (hes 28 now), is this something likely to be cured?
  3. R

    Question Regarding FALS

    I believe my MIL is being tested for C9 and will be receiving gene therapy at some point this year. I am just so worried about my husband ever being diagnosed i dont know how to get it out of my head. I have considered asking the grandmother (mother of my MIL) if she would get tested to see if...
  4. R

    Question Regarding FALS

    Hello, I am new to this forum and my mother in law has been diagnosed with FALS (we do not know what gene yet). She has 6 siblings, 3 of which were diagnosed with ALS in the past in their late 50's to mid 60's. My mother in laws mother is in her 80's and DOES NOT have ALS, she has also...
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