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Update as promised. I have just seen a neurologist (who I know has diagnosed quite a few MND cases here, having myself looked after a few patients with MND over the past year) who does not feel I have anything sinister at this point albeit with some caveats. The examination was less thorough...

G'day everyone. So it's coming up to a year now since I've first been on here - you can read my following threads (though I really don't advise this): Another "Bulbar ALS?" Thread Ongoing ALS concerns... I am now a 30-year-old MD currently living in Australia. I know on my last thread I said I...

Hi there, I've just read your posts which sounds very similar to mine (you can see for yourself). I will not say anything more at this stage with what's happening with me. Was your neurologist aware of your spirometry test results (spirometry can be unreliable, and operator/effort-dependent...

Hi Brandi, how's it going? I've been reading your posts and see you don't yet have an official diagnosis. I'm the same and my PFTs would also indicate a neuromuscular issue. I wonder, given you have autoimmune issues, if you have been tested for myasthenia in the interim?

Hi there, My sleeping has been fine. If anything I sleep more than what I've been used to. My coughing is fine when I work out, though my muscles ache with minimal exercise (much different to before this all started when I would have to lift heavy weights for a good while to exert them). My...

Hi all, I'm really, really sorry for posting again - my old thread got locked automatically which can be accessed here - https://www.alsforums.com/forum/do-i-have-als-als/40349-another-bulbar-als-thread.html My current symptoms all remain or getting worse since this has started 4 months ago...

Believe me I am more than thankful for this for now! I shall now leave this to the hands of the specialists for now and work on anxiety (if indeed this turns out to be this, but hey something to work on at least). On a side note, I have trawled through so many previous threads with people...

Hi kawinpr, I see you have recently logged on. I've read your story and particularly noted the "acute denervation" finding, which was what I've just been told. How have things been since?

Hi all, As promised I said I'll post back. So I've just seen a neurologist, albeit not ALS/MND sub-specialist. The whole thing took about 1.5 hours. He felt there was no clinical weakness (though I did say I was physically strong usually) or muscle wasting involved or any obvious soft palate...

Hi there, I appreciate you hadn't logged in a while but thought I'd give it a try! Like a few others in this forum whose outcome had not been known, your symptoms resembles mine and I wondered how things are? JC