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Hi there! My dad was diagnosed with ALS in 2016. His struggles with the Canadian Healthcare system have motivated me to do something to create change. So that he and others might be better cared for and supported. If you are a Canadian that has been diagnosed with ALS or a related condition...

Thank you <3 <3 <3 I let him that you are praying for him. He is humbled by your kindness. May God bless you also. I wish I could find the words to tell you how much compassion and care mean to us. Thank you again for sharing your story, I'm so sorry for the struggle and loss you have faced and...

Yeah, I think that's what the doctor has written in his file. I think for empathy sake, he didn't go into to too much detail about what form of ALS he had, he just said his symptoms alight with a diagnosis of ALS, but aren't common. It's really interesting how there are such a variety of ALS...

I teared up a bit reading this. It sounds like we share some similar experiences. Thank you so much for your reply. It's comforting to know that I'm not alone, and that maybe, just maybe, my dad is proud of me, just like you and your husband are proud of your children.

In the Fall of 2015 my dad started noticing some weakness and stiffness in his arms. He became more easily fatigue that normal, began feeling like it was taking more and more effort to breath. Being an active person, he particularly concerned and decided to pay a visit to the family doc. On...

Hi Greg, thanks so much for the feedback about my post. How would I go about editing the post to incorporate your/ others' suggestions? I'm new to the form and still learning to navigate the site.

Noted. Thank you for the insight. My thought was that I didn't want to overwhelm anyone with too many details right off the bat. I understand where you're coming from though.

Good call. Thanks Angie. I'll post there.

Thank you for the vote of confidence Angie! You're a true gem <3 I am happy to conduct interviews either in person or over the phone. All of my questions have to do with being diagnosed (whether it's you, a family member, a patient, etc.), how you/ they reacted, and about the ups and downs of...

PARTICIPANTS NEEDED FOR RESEARCH IN TAILORED ENGAGEMENT FOR OLDER PERSONS WITH ALS We are looking for volunteers to take part in a study aimed at understanding how older adults with ALS receive and cope with their diagnosis. As a participant in this study, you would be asked to: share your...