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My dear, sweet mother died yesterday after fighting PBP for 2 short years. She was Dx in Sep 07 after displaying symptoms in April 07. We went to China in March last year for Stem cell therapy, and I have to say - looking back now.. as dissapointed as my mother was (She hoped for improvement)...

I will report back whether the report be favourable or not. It is important that all information be considered - not just the 'happy stories' and I will be more than willing to give an unembroidered account of the trip. We have decided to go as basically my mother feels its worth trying...

Hi, sorry Maren... I've been fairly busy for a while and havent visited for some time. My mothers neuro was not adverse - but could not prescribe lithium carbonate (as per the italian study). Mainly due to additional medication my mother is taking. I found an alternative in lithium orotate...

Thanks Luv! What I wanted to hear... I have been looking at this closely for the last couple of years - strangely before my mother was diagnosed. I've always had a strange interest in neurological illnesses. My brother has Autism in mild form with borderline schizophrenia - with my mother...

Jeff, what dosage are you taking? I was wondering - my mother has PBP and I've been looking at this closely. Her neuro says research has been promising but nothing groundbreaking or solid yet. Therefore, roughly translated - this therapy will not be available for at least 4-5 years under UK HC...

Hi hun, this is a general observation.. Most people tend to feel cold when they have no fat to insultate the body. Generally, anorexics begin to feel cold due to the lack subcutaneous fats beteen the muscles and the skin. They begin to grow soft downy, hair to supplement body heat. If in...

Listen hun, google loves a life threatening disease! Thats why you find some terrible ailment everytime you ask for directions relating to a symptom! e.g. 3 weeks ago I asked for a cause of mouth ulcers on there - gave me a list of ailments on first to third page listing HIV - AIDS, Hepatitis...

Hi there, this is my point in my mums diagnosed.... she was in hosp for 5 days and they gave her diagnosed of mnd bulbar onset. Is this possible? From readings i believe it takes at least a week to diagnosed Lymes... which is (even if rarely) apparent in bulbar region! She had an EMG on her...

Thank you for you reply.. My mother is complaining of aches... I was very graphic with her - desribed pains she may be feeling in pbp - but she insisted she is still feeling acute pains in her neck and has done for the last 5 months... After questioning - the neuro says pain is almost no...

2nd diagnosed Hi Steve, your note makes me wanto get my mother tested by an als specialist asap! The diagnosed may be true or not - but I want to make absolutely sure! People in uk dont seem to want a second diagnosed like I do - in fact consultants in Scotland seem to take personal offence...