I'm so excited. I'm going to help my MIL with a nice romantic dinner with her husband. He's got to go out and run some errands. I'm going to go over and do my usual chores. Get her dressed up nice and fancy. She loves to, just needs help.
She'll pick out the menu and I'll cook it for...
So, I'm getting all these feelings inside me. I am disappointed more of the family isn't helping out. I 'm disappointed with family because I think they're not taking this seriously. I'm disappointed with my FIL because he's not putting his foot down to my MIL. I'm disappointed with my MIL...
Please dont get hung up on my words here. Try and hear what I'm saying. I'm not so good with expressing myself sometimes. This forum has really opened my eyes.
Many of you are unable to speak, walk, use your hands, etc. Many varieties in how this disease is affecting you. Your minds are...
I was thinking if there could be a private caregiver forum. We recently had a heartfelt post from a CALS, that I thought was horrifying at first. I was horrified for our PALS on this site that read that. But had to see that they are genuine feelings.
I think there are some issues that some...
Where can I purchase helpful tools for my MIL? There are grippy things that can go on cutlery I assume. Something to help her grab towels on an upper shelf perhaps.
You know things to make everyday life a little easier.
Thanks!
Ok so my MIL has been diagnosed with familial ALS. She says it's a super rare variety. Her progression is very slow and her sister's progression was very slow as well. Her sister passed away from cancer and not difficulties with ALS.
I'm not sure what they say life expectancy is, but I dont...
My MIL has had frequent bouts with nausea. I'm sure it could be a variety of other things, but am curious. She does have a Dr's appointment soon and will bring it up.
What type of symptoms would you get with the disease is affecting your stomach? Does it normally even? I haven't heard of...
I wonder how much you can look to your loved one for support? I'm having a super rough day today. Very upset. I spoke with the ALS chapter and have the ball rolling. It feels good. I just want to call my MIL and cry to her. I want her to help me through this. She's the parent! It's their...
Have any of your loved ones refused treatment? What have their reasons been?
My MIL has brought up this topic and I'm not sure what to say. I have said that it's her decision whatever she wants to do. I will support her decisions and will do my best to make sure that her needs and desires...
Hello folks. I kind of introduced myself over in the mian forum. But this is a more appropriate spot for me I think.
I'm just starting to work more and help out with my MIL's care. It's becoming super difficult and realized I may need someplace to go to cry or just talk. Sometimes we have...
ability
als
arm
back
bed
chair
cry
familial
familial als
family
fingers
home care
introduction
lift
movement
progression
respiratory
shower
sling
story
swallowing
symptoms
transfer
work