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Yeah, I had a look at the itenary and there is so much stuff going on! I would imagine most people will be pretty exhausted by the end of the day, ALS or not, but I am eager to be of any use if it’s at all possible. You were one of the guys who helped support me so anything I can do just let...

Hello, I’ve been looking for a part of the forum where I could safely post, I didn’t want to intrude on any of the threads which appear for PALS or CALS only. It was really just to say that I live only a short distance from the SECC where the above titles conference is taking place in...

Hi folks. Just back from my appointment with the consultant neuro this afternoon. Just want to say thanks for your patience and putting up with me. She said I had a completely normal neurological presentation and attributed most of my symptoms to health anxiety. She 100% ruled out MND...

Hi folks. Just an update. Got my spine scan results today. Like the brain MRI, there is some kind of abnormality but I couldn't really make head nor tail of it over the phone. Whatever it is, she says it's seen in around 2 out of every 10 scan results and does not amount to anything. Not overly...

Okay, thank you for your responses. The unequivocal answers give me great reassurance as obviously you guys know a great deal more than me about this. I will post my spine MRI results if anything turns up, otherwise I will wait until February before posting again. Thanks again. Neil

Hi everybody. It's been over 4 weeks since I last posted and have refrained from doing so as requested, however there have been a number of developments, so I've really felt the need to post my update. Not a day has passed where I have not thought about posting. I'm now off work with this. The...

Hi Nikki. Thanks for your response. Yes I did have foot drop at the time when he saw me and he said he thought it was isolated nerve damage. And yes, I have a follow up neuro appointment in February, with spine MRI and lumbar puncture sometime before then. I hope anyway, still not got the...

So just back from my appointment. 'As I was' would be the term used, no answers or possible explanations given for the pain in the arch of my feet or the thighs. Actually that's a lie, she said it could be a Thyroid or B12 problem before realising this had already been checked. As for ALS, she...

Hi. I went to see my doctor on October 20th as regards the foot drop, who then referred my to neurology on November 7th. Full blood count and vitamin checks were done prior to this appointment. I tested weakIy positive for C-ANA. I had a physical exam at neurology where the neuro told me he...

Hi Karen, I really, really want to believe that so much, but I am just having endless issues. For the last few days I felt a stiffness in the muscle above my knee and into my thighs, both left and right legs. As the day went on today, I could feel them getting heavier and heavier until I had...