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I didn't write an obit or an "In memory of" for Dad... it seems that I was overwhelmed by everything going and and figured since I talked about it in the caregiver support group that I had said enough, or too much, as it was. Well... I was wrong so here goes... My father, Tom, was born on...

Good morning, I'm a caregiver to my Dad who has ALS. I'm also a student and I'm working on a research essay for my Technical Writing class. I have to choose some type of technology to research and write about. I'm interested in the ERICA system and how it enhances the lives of people that have...

Hi everyone, Despite how intense things are, I am back in school... not really what I want to do right now but maybe it's a good thing for me. Anyways, I'm a writing major and right now I'm taking a class on writing about Technology. It's not really my thing but I suppose that a writer should...

Yesterday the hospice nurse told me that my father is changing, oxygen level is low (80 with or without the oxygen on) and staring into the distance a lot. Last night I got a call and was told to come, he was having severe trouble breathing. I went and he was struggling and forcing himself to...

I didn't go see my Dad for a couple of days because my brother finally got back to town and I needed a break. Last night I checked in with my brother and he told me that Dad was doing really badly, non-responsive and slept the whole time he was there. I called & spoke to the Hospice staff who...

Last night I had a dream that my Dad called me. He hasn't been able to talk for a few years now, his speech has been unintelligible for about 4 years. Anyways, in my dream he called and his voice was perfect! He said that he woke up being able to talk and didn't think it would last long so he...

Yes, me again and still on an agonizing emotional teeter totter. My father continues to suffer and go downhill and new symptoms are developing. He has an eye infection, probably pnuemonia (he won't let them xray so it's speculation), constant pain & anxiety and now his feet and hands are...

Hi all, I haven't come in here in a while because I thought I was maintaining pretty well. My father has suffered from ALS for about 6 years now. In fact, the first time I noticed something was wrong was on my 31st birthday when we went to dinner and his speech was odd and he explained he was...

I found out today that a room is available for him at a nearby Hospice House. He will have his own room with a private bathroom and private patio...it's a big room, all of his stuff and his computer can fit in there. I freaked out when they told me, although they had warned me that it was likely...

Hi everyone, My brother just went home after giving our Dad his shower. My brother comes every other day and takes Dad into the shower and gives him a full/real shower. It's becoming increasingly difficult to do and tonight he told me that it is time to call Hospice, for our father's sake, and...