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    In memory of my Dad

    I'm trying to find a new normal because so much of my life before ALS is gone now. I have a different job that pays way less so now that I have time to see it, I see that my finances are a disaster! I am a student and had taken time off last year so now am back full swing and taking 2 classes...
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    In memory of my Dad

    KeeKer, That is a great idea about the lights! Dad's hospice house where he lived has a fountain and when someone passes they ask the families to paint or color rocks to put in it. My neices & I did several and I placed them at the foot of the little waterfall. Dad loved rocks so this was a...
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    Caregiver frustration, anger, guilt...

    My father went through the same exact type of behavior and it was very difficult to continue to like him during that part of his illness. I think he finally became reliant on using a pen & paper after I broke down crying in frustration from not being able to understand him anymore and him being...
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    Ok Folks - need powerhouse advice...

    You're going through some hard things and your sibling is too. I learned how vastly different we all handle loss & grief during my recent experience. I too was worried about how a couple of people would be during the ceremony and after at the memorial. I actually told them ahead of time that I...
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    Worried that I have the disease as my mom did.

    Sometimes ALS is hereditary but not always. It can't hurt to get a check up as Sharonca suggested and may set your mind at ease. Sometimes I get clumsier if I'm tired or not eating right... and as we get a little older we need more supplements. My coordination is not what it once was and if I'm...
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    In memory of my Dad

    mndireland... my dad was a difficult guy, cranky, moody, mean sometimes but then the other side of him was the most wonderful guy ever. We would be having a day where he was being a pain and I would be SO frustrated with him and then something stupid would happen, like I would drop something and...
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