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  1. jethro

    Heart rate (BPM) and blood pressure in ALS

    what is your heart rate and bp? there is a general info that bpm decreases over time and is considered as a survival predictor.
  2. jethro

    Which respirator (NIV) do you use?

    subject
  3. jethro

    Bloodwork 6 years after diagnose

    i am strongly convinced that general bloodwork (but even if there's no biomarker like P(rotein)75ECD in urine) tells everything. what are you trying correct? my bloodwork - never better in my life, except low creatinine and elevated ck. but these are the consequences.
  4. jethro

    Rapamycin (sirolimus), decade after last post

    anybody on it? i just started with an adaptation...
  5. jethro

    My neuro: "are you ready for a rumble?"

    he stated that my fasciculations gone. but reflexes are stil brisk, all my limbs (except toes) are functional. hm... ian is comming?
  6. jethro

    Do fasciculations ever stop in pALS?

    q is in a subject.
  7. jethro

    NIV machine/respirator recommendation

    i can borrow niv from my hospital. someone should return it when i die. i don't like that. which one do you recommend/suggest? all i need is just type... i don't fly to pluton, neither i am beggar. mid class...
  8. jethro

    P 75Urine testing?

    why p75 protein from urine is not widely in use?
  9. jethro

    Is microbiome cause of ALS, or at least - related?

    this seems to be my last investigation station. microbiome is THE ONLY thing that is not perfect on me, so i dig. firmicutes, low akkermansia and diversity are my focus. metformin (panacea?) does it's job incredibly fine - increases akkermansia muciniphila, along with TCM, fos and gos. it...
  10. jethro

    Eye problem(s)

    my als started with right eye twitching. right eye is ok now, but left eye started to make problems. when i speak, it simply blinks, and then closes. anybody?
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