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Hi Stacey I know exactly how you feel. I go anywhere away from my fiance even though I know someone is with him to care for him and I never have a good time because I worry the whole time about what if's, or for guilty if I laugh or smile a little while he is at home. You are not alone. Stacey

califsand I am also new to this site but the last few nights I have learned alot and received a lot of help. I cannot give you any solutions but I can say as the caregiver of my 40yr fiance with als that I completly understand what you are saying as I have had the very same fights with being...

stressed Thankyou all for your input as it has helped me a lot and it helps to hear people's opinions who have an idea what I am dealing with. When you talk to other people who know nothing about the disease they automatically take to my side and I did not want that as I did not know what all...

thankyou That is sooo good to hear...I really worry about it alot but that eases my mind some. Thankyou!

? I just went in to feed him which he has not been eating well lately and he got mad at me because I was trying to get him to eat the important stuff and started calling me "Fat a** B****!" and being very nasty so I got up to leave and then he looked at our son and said "Your mom's a b****!"...

I read a lot of things about als being passed on to your children and what I have read is that is the parent who has als does not have it passed down through the family through other family members and the one parent is the only one who has had it the chances of my son getting this terrible...

thinking of you and learning Citalli, I read the things you write here and wonder when I will have to go through it and if it will be the same but I think my fiance will be the type to have a lot of anxiety with the breathing issues as anyone would ....I could not imagine going through that...

stressed I know in my mind you guys are right and I keep trying to do this to better the relationship between my fiance and and also make a good one between our son and his father but everytime I bring it up he cons me out of it which is exactly what Beth said he would do but I also have a hard...

I relate I too care for my fiance on my own and our son just turned a year old last month August. I don't get hardly any sleep either but know that there are others here who understand as I do . I know it made me feel better just knowing i'm not the only one going through this. Stacey

at home programs California is not the only state that pays for a care giver at home as my fiance has als and I have been paid through a program to stay at home with him and care for him but they allow only so many hours a day depending on the needs and I live in South Dakota.