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  1. L

    Didn't think I would be back

    My first neurologist diagnosed me with HIV Associated Vacuolar Myelopathy and didn't think I had ALS (less than a year ago). The second neurologist concurred and all the extensive testing was normal. My I.D. doctor thought I had ALS and just recently I went to a neurosurgeon to find out what...
    • LabradorsRule
    • Thread
    • als atrophy back brain cold diagnosed diagnosis hiv mri muscle neurologist pain reading symptoms testing tests update v.a. veteran weakness website wheelchair work
    • Replies: 3
    • Forum: Could this be ALS?
  2. L

    I was misdiagnosed - I don't have ALS

    Neurology is a very fine field of diagnosis. My respects to the those in the field. My actual diagnosis is HIV Associated Vacuolar Myelopathy. It runs nearly the same course of ALS, but is a bit faster. It's been over three decades of being HIV positive. I held fast and hard in keeping my...
    • LabradorsRule
    • Thread
    • als diagnosis early health hiv life medicine neurology pain paralyzed speech support swallowing veteran veterans
    • Replies: 17
    • Forum: Could this be ALS?
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