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I’d like to hear some pros and cons of the idea of having a 'multidiscipline person' to augment Clinic, one who makes house calls? I could see someone with OT background learning PT and speech as they relate to ALS, even respiratory if there is a portable machine to test. Seems like it would be...

Wow, each neurologist has a different answer! During my first 3 and a half years, several neurologists said probable PLS. When I was sent to Clinic, that neurologist described it as a “slow progressing variant of ALS.” He didn’t like the term PLS, saying that all fell under ALS. Now a year...

Have read the earlier threads on lift chairs and am homing in on the Golden Cloud 510MLA. Will the heat and massage add-on be important later on as my ALS progresses? I’m still in the early (pre-hoyer) stage, but no longer walk. Personally, I’m not fond of the massage feature (don’t like to...

Hello. I’m a leg gal (i.e lower limb onset). I was diagnosed a year ago, but the first symptom was more than four years ago, when, after a fall, my swollen ankle didn’t heal right. Turned out to be a drop foot. I went from walking with a cane, to getting a brace, a walker and finally a...