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    Some place to talk to extended family

    Hi all, We (meaning my husband and I) have known for about 2 weeks now about my father-in-law's diagnosis, bulbar-onset ALS, fairly progressed. We had the followup appointment with the neurologist to ask any questions we wanted, but the one question I couldn't ask was about telling FIL's...
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    What should we ask neurologist?

    My father-in-law was diagnosed with bulbar ALS almost 2 weeks ago. We have an appointment Monday afternoon that is basically a conference with the family to go over any questions we may have. Truthfully, we have no idea what to ask. After his EMG the day of his diagnosis, the neurologist told...
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    Questions for family to ask neurologist

    Hello all, My FIL was just given bulbar onset ALS diagnosis last week after an EMG/nerve conduction study and extensive testing before that to rule out other things. The neurologist only scheduled time for the testing that day and wanted the family to return for a group consultation to discuss...
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    New member saying hello

    Hi, I just found this forum and joined. My father-in-law was just diagnosed with bulbar onset ALS. He is 64 and has lived with my husband and myself for the past 11 years. In July of this year, he had sudden onset of inability to swallow. His left vocal cord is paralyzed with aspiration of any...
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