Search results for query: *

  • Users: sral
  • Content: Threads
  • Order by date
  1. S

    Has anyone used LDN?

    Hi, I was just wondering if anyone has used LDN and what their experience has been? thanks.
  2. S

    Spasms versus fasics ?

    Morning everyone, My mom told me this morning that she feels her leg muscles bouncing around and that it's causing her much pain. My immediate thought is that she now has fasiculations in her leg. I'm just wondering how does a spasm feel and how does a fasiculation feel?
  3. S

    what type of massage is good for PLSers

    Hi everyone, I was wondering if anyone knew what type of massage is best for spasticity and pain due to fatigued and spastic muscles. When looking for massages I'm bombarded by all these different types, i.e. swiss, deep muscle etc etc. Any advice is appreciated. I think Frizzel had...
  4. S

    Form of progression, one sided or both limbs first?

    I've always wondered why there was a difference in how PLS progresses and if there was any connection to speed. For instance, my mom's first symptoms were bulbar and 18 months later started in her right foot and leg. From the right leg it moved to the left foot and leg. Both her legs were...
  5. S

    Pain - PLS supposedly painless

    I'm so tired of researching pain for my mom's PLS condition and getting the type of definitions as below "Primary lateral sclerosis (PLS) is a rare, neuromuscular disorder that affects the central motor neurons and is characterized by painless but progressive weakness and stiffness of the...
  6. S

    Happy New Year!

    I just want to wish everyone a very happy and healthy 2009. Here's hoping for a treatment in 2009!
  7. S

    The feeling that every day is abit worse than the day before

    Hi, I was just wondering if any of you have the feeling that every day feels alittle bit worse than the day before. PLS is SUPPOSE to progress slower, but it still progresses. Is the progression noticeable to you on a daily basis whereby you feel yourself abit worse than the day before. I'm...
  8. S

    Balcofen - How does it work for you?

    My mom has experienced extreme leg pain for the past 7 months. At her most recent neuro visit, she was seen by a pain specialist who said that the leg pain stems from spasticity. He believes that my mom's muscles on continuously contracting, causing inflammation and thereby pain. He believes...
  9. S

    Bulbar Onset - speech difficulty?

    Hi, I was wondering whether anyone with bulbar onset PLS or anyone with bulbar symptoms since onset can help me understand how bad speech can get with PLS? My mom's bulbar symptoms started 2 1/2 years ago and although she can still communicate and I understand her, her speech is quite slurred...
  10. S

    Knee buckling

    Hi Everyone, I was just wondering whether anyone has issues with the knee buckling when you walk.
Back
Top