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Please know you are not alone, and it is more likely that you will receive good news than bad news when you go to the ALS clinic. I have an appointment with the boston clinic in november. Also, definitely check for lyme, I had a negative test but am doing another thats supposed to be more...

Hi Signe, Good evening. I am sorry you are dealing with this. I'm reaching out because I am currently exhibiting some concerning symptoms and am worried about FALS as well. Doctors and folks on this thread have been telling me I may be having a PTSD sort of reaction as well.. So good news...

Atsugi, Thank you.

Atsugi, and Nikki, thank you for your replies. @Atsugi, what I mean by diagnosis is hopefully there is an alternative reason I am having these symptoms, and if so I want to get to the bottom of it ASAP as it has just continued to get worse. As you all on the forum plus my neuros agree it is...

Quick recap: Noticed sluggishness in hands in July, began to feel unsteady on my feet about a month ago, difficulty breathing during 'normal' activities (walking to the store, light workout), Mom died from ALS at 52. Update: Thanks everyone who has been involved in this conversation. Since my...

Thank you for the information Laurie. I will take a look at the sticky. Best, Jeff

Hello, Thank you for taking the time to read this. I am bumping this post back up because I believe the added symptoms below that I did not include in the first post may be important.. Also, looking for some advice for some upcoming doctor's appointments. I set an internist appointment...

Thanks Nikki

Hi Nikki, Thank you for the insight. Super helpful and reassuring. I will go in for a visit with my PCP. What is most concerning is that my hands seem to be getting progressively worse. Things like manipulating my house keys in my hand, getting things out of my wallet, I'm dropping things...

Hi all, Thank you in advance for taking the time to read this. I am going to do my best to keep this succinct. Any help and feedback is tremendously appreciated. Here is what's going on: In 2011 I lost my mother to ALS. In 2009 my grandmother passed away from MS. I am 26 years old, and...