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  1. L

    Progression over a year

    I'm just getting this off my chest. It's messed up to pick apart someone going though this and practically make them prove by posting their records what their Dr. is telling them. I came back here for help because as the neuro said and I confirmed with pcm today that from previous tests(emg...
  2. L

    Progression over a year

    I was only told 82% for whatever he was concerned with he read through lots of stuff. I'll figure this out on my own. Please delete this. I'm sorry I bothered you all.
  3. L

    Progression over a year

    I sort of feel unwelcome but wanted to post an update in case anyone had suggestions to share about how to navigate these processes. I saw my PCM for the the PFT results today. My lung volume whatever test was 82%. No evidence of copd or that it's from asthma. His words were that he sees it...
  4. L

    Progression over a year

    I needed intubation for the biopsy as it was open. It's about a 2-3 inch incision down the center of my calf in the back.
  5. L

    Progression over a year

    I do not have more information from the rest yet. The ordering Dr. has to give me the actual results. It was not like this at all with breathing a month ago. I've had well controlled asthma for a long time but have never smoked and it's never been like this. In the test they gave me a...
  6. L

    Progression over a year

    I have a closed thread about atrophy in my gastrocnemius. Here is my story until now. May of 2017, tore gastroc. At PT they thought it seemed neurologic and their hypothesis was that the tear was secondary to existing atrophy that I had not noticed. My toe taps on the affected leg were...
  7. L

    Calf atrophy

    Thank you. I got a referral for EMG today. They did an xray, ultrasound, and MRI before sending me to PT. I think that is why they ruled a couple of the other things out already. I know they say they ruled out the bone in the muscle and the tendon rupture prior to sending me.
  8. L

    Calf atrophy

    So, I am not here for twitching. I never suspected ALS until my PT mentioned needing to see neurology/ortho for a muscle biopsy. I tore my gastrocnemius in May. It is not healing. Not responding to PT. I have lost an inch of muscle mass in the last 5 weeks in that calf. I was told...
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