I tried sending this to your private mailbox Leslie (my first attempt at doing this), but it didn't work...something about it being full or something...but I haven't posted in a while, so I thought I might as well pop in and say "hi" to everyone...
My appointment at Strong is Wednesday (thanks...
OK, I'm a little p*ssed. Had my follow-up EMG with the quack at the ALS clinic, and he spent all of 10 minutes (I am serious - that's it) testing me, then declares that I am fine and can just go live my life. I am perfectly willing to do this, but wtf? He couldn't have been more dismissive of...
Just got back from the clinic. I met the breathing person (my FVC was 90 upright and 82 laying down), a social worker, a research person, and a few others I can't quite remember. It was quite a parade.
Basically, it was decided that there is something wrong, given my really brisk reflexes and...
Hello again - As some of you already know, I've been referred to the ALS clinic here in Syracuse (twitching, gagging, dirty EMG, etc., etc.). My appointment is October 3. To those of you that have gone through this (or even those that haven't, please comment too!) what can I expect from this...
Greetings,
I've been putting off posting on here, because it seems to make what may be going on with me more "real." But here it goes. Some of this information may be irrelevant, but I thought I would throw it in just in case someone out there is more clever than I am. Don't worry, I get to my...
abdomen
als
autoimmune
back
brain
denial
eating
emg
fasciculations
fingers
health
information
insurance
iron
life
life insurance
lump
lyme
medical
mnd
mri
muscles
neck pain
neurologist
neurology
pain
planning
problem
questions
shoulder
surgery
swallowing
swelling
symptoms
test
trouble swallowing
twitches
weakness
work
worry