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I am hoping the group can give me some advice on talking with my husband and family about ALS. I am not diagnosed but ALS runs in my family and my symptoms are getting more and more obvious. Soon I will have to start answering questions from my family. On one side, I don’t want to worry...

Hi Steve, I was in Llangollen for a couple of days only. I have not yet tracked down any relatives in Wales but I know that some of my ancestors came from Swansea and Cardiff areas - or al least left for the Americas from there.

I am not sure how to hide locations; but I have to ask...why would anyone be upset that you live in one of the most beautiful places on the planet? I was only lucky enought to visit Wales for 3 days but they are some of my most cherished memories.

Thanks Cindy, Its nice to know that I am not completely crazy! I hit a point of overload; I can logically understand that all doctors are not bad and some of them even know something but I have just gotten so angry and frustrated. I don't think my GP would very much like to see me in the...

@#&(&* doctors! I am so fed up with my GP! I am boycotting doctors for the month of October. I know that sounds really weak - but I need a break. If my diagnosed is really ALS, a month is not going to make a big differencce in my condition and it might just reduce my anxiety! My last...

Hi, I was just tryting to update my profile to change it from "I have been diagnosed with ALS" to "I am in the process of being diagnosed with ALS" and "I am interested in ALS" and I received an error both times asking for the diagnosis date. Not a big bug... Pythia

I have some pretty shaky and twitchy hands and feet. I am trying to conceal all my symptoms from my family until I have a diagnosis. It is becoming increasingly hard to blame it all on too much coffee! I have found that I can hide some of the shakes and twitches by always hanging onto...

FINISH YOUR DEGREE! I dropped out of grad school for what seemed like insurmountable odds; now it is one of my biggest regrets. ...just my 2 cents

I made my first post similar to this last week. I am still scared, but no longer terrified. The people on this forum are really great - I am sure someone can tell you more about ALS and the symptoms. Good luck with the EMG - I have to wait several weeks for insurance approval to have one...

Thanks for the tip! I need all the help I can get when dealing with my insurance company!