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For my mom's case, she was also suspected as lumbar spine problem and suggested to do surgery for it. we went to another hospital for diagnosis and diagnosed as ALS. We went Standford ALS department(?) for second opinion and finally diagnosed as ALS on August 2017.

Hi all, thank you for sharing your story and comments. when i first post about my mom's finger movement, she gained a little bit of movement on her index ,pinky, and thumb fingers. My mom was unable to move any part on her own(except her mouth and eyes). So i just wondered if this was a common...

DeeDee you are right! our family is feeling thankful for everything :)

Hi Karen, thank you for your opinion. Just wondered if this was overall symptom for ALS patient or not :)

Thank you Nikki for sharing your experience! I don't doubt about her diagnosis but was wondering if it was one of the common symptom for ALS patient. Next year will be 3rd year of her diagnosis and I am very concerning about her new symptoms.

Hi all, It's been long time that i havent ask questions on forum. your response really helped me regarding how to treat and take care of my mom. I really appreciate your help. Now i have another question to ask in case you might experienced same thing My mother diagnosed on August 2017. Now...

Hello Karen, Kate, and Laurie Thank you for the reply. We have Oximeter to see her O2 and heart rate. Her O2 is above 97 and her BP is also normal. She done several EKG and heart test (CT, xray) and came out normal. If mom has cardiac issue, we cant find out from CT or xray? We see my mom's...

Hi all, its been long time that i posted in here. (i think last question i asked here was about trach. ) Thanks to you guys, we could prepare everything and learned what we need to know about the trach. For better understanding i want to update my mom's status first. She got the g-tube when...

Hi Patrick, the hospital planning to discharge my mom tomorrow (10/30) but they are discharging my mom without PMV and swallow test. I know it is case by case but how long did it take you to tolerate (?)/ speak with PMV? today is my mom's 10days of staying at hospital but they tried PMV twice...

Hi Sue, the hospital planning to discharge my mom tomorrow (10/30) but they are discharging my mom without PMV and swallow test. I know it is case by case but how long did it take Brian to tolerate (?) speak with PMV?