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My wife had a screening exam today. All looked good, waiting for the blood test results. They should be good, as she just had blood work done recently and all was good. I saw just one other post on this, but it sounded like the guy didn't continue with the trial. They told us that one in...

My wife is between her 2nd and 3rd rounds of Radicava. I just got the EOB (Explanation of Benefits) from Blue Cross Blue Shield for the first two rounds, provided by Soleo Home Health. Round 1 - total cost $57,445. I owe $2665 of it. Round 2 - total cost $41,032. I owe $0. Pushing $100,000...

Wife finished first 14 day cycle last week. Had one bag leak bad. I had to pinch it together with my hands for the 30 minutes it took to infuse. Turned the rate up to 250. Probably only got 60% or so of the med in her, rest ended up on the floor. I think the key is to hold the bag...

Assuming you had access to both, and cost was not an issue, which would you choose? Radicava or a 50/50 coin flip as a participant in the NurOwn stem cell trial (placebo or actual treatment)? You can't do both. My wife started Radicava last week, but is still haunted by the PR from BrainStorm...

We have not had that issue. Our infusion nurse said that she had heard about bag leaks, etc. So we are very careful to insert the spike right in the middle of the rubber area. Five days, ten bags, no issues...

I have Blue Cross Blue Shield via the Texas exchange (i.e. Obamacare). They approved Radicava for my wife, and she started her infusions on Friday. I am doing them at home now.

My wife starts Radicava here in Houston on Friday. We got the call from the infusion center last night that Blue Cross Blue Shield had approved us. Question - PICC line or port? I've read the posts above, and there seem to be some of each. From what I just read, I think a port would be...

My wife has been prescribed one. Obamacare BCBS plan won't pay much for it, and with huge deductible I will effectively be buying it on my own nickel. What make and model is preferred? Philips T70? Where is best place to buy one online? Factory refurb OK? Local DME wanted $8600... Seems...

My wife is 52, and was recently diagnosed with ALS. She hasn't worked since 2000, when she stopped to be come a full time mother. She does have enough work credits to be eligible for disability, since she hasn't worked in the last 10 years. But she does have a work record that goes back to...

Thanks again all! We just booked a vacation for early August.