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My Pals started a downward spiral 30 days ago. Could no longer talk, appetite diminished, slept 14-15 hours at night and often a long nap in the afternoon. I asked twice if she wanted our granddaughters to come decorate for Christmas and never got a response. I had them cone out anyway and she...

My pals began a new behavior last week. She has been dealing with a lot of losses - speech, ability to swallow food, choking on pheglm etc. and started sleeping more and more. Sleeps 11 hours at night. Gets up and tries to drink a little coffee, goes to bathroom then gets back in bed. Family...

My PALS’s hands are starting to bend in claw like. Are there any splints or braces that have helped with this condition?

My wife has started choking more frequently — usually on liquids, but sometimes on grainy food. I don’t know what to do in theses cases. She continues to cough for a long time. We have used the cough assist with some success, but have not yet used the suction device. She gets a bit panicked and...

My PALS has been losing strength in her hand but now experiencing pain in her hand, wrist, upper arm and shoulder. What could be causing this and has anyone found a pain remedy?

My wife uses the Trilogy about 12 hours a night and then about 2 hours with an afternoon nap. Her last FVC test score was 25. Is there a “normal or expected” progression of needing to spend more time on the Trilogy? I saw on one post that the pals was on the Trilogy 24 hours a day. Can that be...

My wife is on the noninvasive ventilator 12 hours at night and looks forward to that time — except that there are nights when she has leg pain most of the night. These pains are debilitating and don’t respond to Tylenol, Hylands Leg Cramp pills, heat, cold, massage. I reposition her 3-4 times...