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I have to say, walking my dog (lab mix, name Lucky) is one of the great pleasures in my life. I will continue doing it as long as I am able. So Hang in there, you did NOT do a "stupid" thing!

Thanks for posting the pics, Leo. I too participated in the walk- I'm not in any of the pics so y'all will just have to take my word on it:)

My condolences and best wishes to Suzanna's family, and to those here who knew her.

yourebeing, Yes, what you describe is a faciculation of the tongue. I have tongue fasciculations of the type you describe. Have had them for almost a year. Whether or not this means you have ALS would need to be part of a comprehensive neurological work-up; in my case they are only one...

Al- Just saw the pic. Very kewl! Keep smilin':)

Honeymoon! How kewl is that! Now that's what I call LIVING with ALS:) I, too, can pretty much fool people into thinking nothing is wrong- unless they see me trying to get dressed or cut a steak. Public restrooms are becoming problematic. But I can still do pretty much anything I used to...

Most PALS, when first diagnosed, will look for whatever hope they can find. If you look back to the start of this thread, you'll see I went through that phase as well. The thing you have to understand about Edney and people who follow his regimen is that they reject Western medicine...

Yes, on the bus trip through Denali, a herd of moose walked right by the bus, as did a wolf and two caribou. We saw bears in the distance, which is how I prefer it:) All the locals said the same thing about the rains. The day I was booked to go to Denali from Anchorage, both the railroad and...

.....I'm still out here:) Not spending as much time on the ALS Boards as I was when first got the word. But I still remember all the support I got that helped me adjust. I'm doing okay, I guess. Hands, arms continue to weaken. Legs still strong, no problems eating or speaking. Fascics...

The first few weeks after you get the diagnosed. are really hard. I cried a lot and spent hours on the computer doing obsessive research and copious posting on Boards like this. Gradually I just began "living" again. Now, seven months after my diagnosed., I'm pretty much doing the things I...