Search results for query: *

  1. H

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    I'm retiring at year end from a law firm and am having some nice celebrations. Using a power wheelchair a lot more. Speech is hard to understand, and I get all nutrition through a feeding tube. Getting weaker, but I still do what I can (including putting damn contact lenses in every day). I...
  2. H

    Helping Others Help Us

    B, Your post lifted my spirits. As terrible as ALS is, I have found one silver lining. Various people I was once close to have heard the news and reached out to me. The expressions of love and support have been wonderful. Hudson
  3. H

    Recently Diagnosed

    Thanks, all. I will definitely stick around the forum.
  4. H

    Recently Diagnosed

    I had sought and received useful feedback in June and November 2017. At the time, my neurologist had two possible diagnoses: a type of neuropathy or ALS. I was being treated for neuropathy with IVIG, and -- given my exercise regimen and other information -- commenters thought I did not have...
  5. H

    Seeking Guidance (Again)

    Mike, Thank you so much for the thoughtful comments. I'm so sorry you had to go through the experience of losing your wife to gain your insights.
  6. H

    Seeking Guidance (Again)

    Thanks. I'll raise the issue of another EMG. Also: 1. The neurologist treating me is a preeminent expert on ALS. 2. Both doctors understood that Lou Gehrig's disease is ALS. I believe that their formulation was just a short-hand way of saying that I did not have a rapidly progressing form...
  7. H

    Seeking Guidance (Again)

    I had sought guidance in June and received helpful feedback. I have an update and would appreciate any thoughts. I am a 65-year-old male. In mid-2016, I started to have swallowing issues with food occasionally stuck in my throat. I also started to have intermittent issues where my speech...
  8. H

    Seeking Guidance

    Thanks, Wendy. You're so right about being in limbo.
  9. H

    Seeking Guidance

    Thanks for your comments. I don't believe the PET/MRI showed anything of significance. On the EMG, the neurologist said that he saw some irregularities, but they were not definitive enough to point to a diagnosis.
  10. H

    Seeking Guidance

    I have been seeing a top neurologist for several months. He has told me that I might have ALS, although I might also have some other MND or some form of neuropathy. I would appreciate any thoughtful reactions based on the following facts. I realize that any views expressed have limits, but at...
Back
Top