I'm retiring at year end from a law firm and am having some nice celebrations. Using a power wheelchair a lot more. Speech is hard to understand, and I get all nutrition through a feeding tube. Getting weaker, but I still do what I can (including putting damn contact lenses in every day). I...
B,
Your post lifted my spirits.
As terrible as ALS is, I have found one silver lining. Various people I was once close to have heard the news and reached out to me. The expressions of love and support have been wonderful.
Hudson
I had sought and received useful feedback in June and November 2017. At the time, my neurologist had two possible diagnoses: a type of neuropathy or ALS. I was being treated for neuropathy with IVIG, and -- given my exercise regimen and other information -- commenters thought I did not have...
Thanks. I'll raise the issue of another EMG. Also:
1. The neurologist treating me is a preeminent expert on ALS.
2. Both doctors understood that Lou Gehrig's disease is ALS. I believe that their formulation was just a short-hand way of saying that I did not have a rapidly progressing form...
I had sought guidance in June and received helpful feedback. I have an update and would appreciate any thoughts.
I am a 65-year-old male. In mid-2016, I started to have swallowing issues with food occasionally stuck in my throat. I also started to have intermittent issues where my speech...
Thanks for your comments. I don't believe the PET/MRI showed anything of significance. On the EMG, the neurologist said that he saw some irregularities, but they were not definitive enough to point to a diagnosis.
I have been seeing a top neurologist for several months. He has told me that I might have ALS, although I might also have some other MND or some form of neuropathy. I would appreciate any thoughtful reactions based on the following facts. I realize that any views expressed have limits, but at...