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  1. P

    Mucus Help- Bulbar ALS

    Dear all, My mom has been having a very difficult time with mucus accumulating at the back of her throat and not being able to swallow or get it out. She uses a cough assist once a day which she hates. A suction machine helps a little but not as much as we hoped to. For medication, she takes...
  2. P

    Bulbar ALS Diagnosis

    Hi all, My mom was diagnosed with Bulbar ALS in June of 2017. Her initial diagnosis was made by a specialist in Houston. We visited the Mayo clinic last week to get a second opinion where the doctor did some basic evaluation and made the same diagnosis. He suggested he didn't need to perform the...
    • pm2017
    • Thread
    • als bulbar bulbar als clinic diagnosed diagnosis emg neurologist second opinion tests wanted
    • Replies: 9
    • Forum: Newly diagnosed
  3. P

    Bulbar ALS - treatment options?

    Hi everyone, My mom was recently diagnosed with Bulbar onset ALS. We are desperately trying to find some alternative treatment options besides her regular medication. I read some previous threads with really good information but wanted to check again if anyone had recommendations regarding...
    • pm2017
    • Thread
    • als bulbar bulbar als bulbar onset cell clinical diagnosed information onset stem cell treatment treatments wanted
    • Replies: 11
    • Forum: General discussion about ALS/MND
  4. P

    Possible Bulbar ALS

    Hi all, My mother was diagnosed with possible Bulbar ALS few weeks ago. We're praying that it's something else that can be treated. Wanted to share her symptoms and hear your thoughts/suggestions please. She started having voice issues, mainly hoarseness, since about 8-9 months ago. Few months...
    • pm2017
    • Thread
    • als bulbar bulbar als choking diagnosed emg movement muscle muscle weakness neurologist possible a speech speech therapy swallowing swallowing issues symptoms test therapy voice wanted weakness
    • Replies: 0
    • Forum: Could this be ALS?
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