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    I understand about rules:) I just could not find anywhere in the FAQ not to post links...

    I understand about rules:) I just could not find anywhere in the FAQ not to post links, especially helpful links. I have read them all, perhaps I missed that. Do you know where that rule is? Sorry about complaining about bad day, my husband knows those better than I do! for sure! Hope you...
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    seems we can never get a balance with the horrible secretions. I should take stock in paper...

    seems we can never get a balance with the horrible secretions. I should take stock in paper towels, it's unreal the amount he uses! I hate this so very much! My husband seems to think we should stay with what we have for about the same reason, we don't want the cmn changed and then he can't...
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    I had never heard of it either but we have a mobile doctor here and it was suggested to us. I...

    I had never heard of it either but we have a mobile doctor here and it was suggested to us. I am thankful that we found them, I can't remember doctors coming to homes since my grandmother's time.:) Thank you for that point, my husband is tolerating this formula fine now. my only issue is the...
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    I have his GP coming to the house today to give him a Pneumonia shot, so I will ask to start the...

    I have his GP coming to the house today to give him a Pneumonia shot, so I will ask to start the process for the pwc. Thank you again, I hate this beast too and agree that no one should have to endure this:* right there with you! Is Isosource better nutrition, perhaps I need to check into that...
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    PS-My husband is on Tussin to thin secretions when needed from the acetylcysteine thickening up...

    PS-My husband is on Tussin to thin secretions when needed from the acetylcysteine thickening up mucus plugs ( he uses that at night before bed). he is also on glycopyrrolate, transderm scop patches, duoneb during the day and when needed, atropine under the tongue. we don't use that much, it has...
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    My husband uses a nasal mask, we and the therapists are aware the air escapes but he just can't...

    My husband uses a nasal mask, we and the therapists are aware the air escapes but he just can't use a full facial mask. We are one year in, perhaps as this beast progresses, things will change. He has said no to trach. I'm glad to hear your husband is still walking some! And still texting...
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    Hello:) Just wanted you to know how encouraged I am that you are here! I have been so lost at...

    Hello:) Just wanted you to know how encouraged I am that you are here! I have been so lost at times with this nasty beast! Is your husband on a NIV? My husband was referred to hospice in March and I don't think a day has gone by this past year without my crying. I think they were too quick...
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    hello, wanted to say hi to you and warm hugs! My husband has Bulbar onset and he did gain some...

    hello, wanted to say hi to you and warm hugs! My husband has Bulbar onset and he did gain some weight back after the PEG was placed! Here if you need me!
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    Thank you Affected:) I posted a new thread under CALS. Not tech savvy, but your instructions...

    Thank you Affected:) I posted a new thread under CALS. Not tech savvy, but your instructions were wonderful. Love and Hugs to you! terrik
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    One Year since Diagnosis- From a Wife and Caregiver

    Hello, I'm TerriK, Wife and Caregiver of my Husband diagnosed with Bulbar onset ALS one year ago. He started with syrupy speech in November 2015 and muscle atrophy in his upper body. After numerous tests, MRI's, Blood work, Doppler.........Visits to Neurologists, ENT's, GP.......etc.....we...
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