Search results for query: *

  • Users: Chrismarie
  • Content: Threads
  • Order by date
  1. C

    Digestive issues help-baclofen

    Over 2 years into this disease, and one of my husband’s big problems has been abdominal cramping, bloating, diarrhea, constipation- you name it. Hospice has recommended everything you can name. Not much helped. Each day in mid-afternoon, he would get abdominal cramps and just feel awful. He...
  2. C

    Respiratory Onset- Update

    Thought I would give status on my husband for those few with this ALS type. After 10 months of tests, his final diagnosis was July 2017. He is weakening and hasn’t left house for several months. Just better since breathing is very tough. He is on trilogy 18 hours a day. A blessing that...
    • Chrismarie
    • Thread
    • als anxiety breathing bulbar clinic diagnosis hospice hours morphine nose onset pain respiratory respiratory onset symptoms tests trilogy update walker weakness
    • Replies: 2
    • Forum: General discussion about ALS/MND
  3. C

    ALS Respiratory Onset

    My husband has been having increasing breathing problems and weakening starting a year ago. Any exertion wears him out. After many tests for many issues, nothing has been found. However, 2 EMGs found issues in arm and leg. They say they can't diagnose als without three markers. Maybe it...
    • Chrismarie
    • Thread
    • als arm bipap breathing breathing problems diagnose diagnosed diagnosis falling onset oxygen problems respiratory respiratory onset sleep stiffness swallowing swallowing issues symptom tests twitches
    • Replies: 6
    • Forum: General discussion about ALS/MND
Back
Top