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    Digestive issues help-baclofen

    Yes it does help with bloating. Gas x and mylanta did nothing. Now he takes Baclofen once in mid afternoon and he takes 2 tums after every meal. This regimen doesn’t eliminate gas, but it really helps him overall.
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    Digestive issues help-baclofen

    Over 2 years into this disease, and one of my husband’s big problems has been abdominal cramping, bloating, diarrhea, constipation- you name it. Hospice has recommended everything you can name. Not much helped. Each day in mid-afternoon, he would get abdominal cramps and just feel awful. He...
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    Woke Up - Air Hunger

    What a blessing you are to so many pals and cals. Thank you for letting us travel with you. ❤️
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    Woke Up - Air Hunger

    So sorry about your son. So many of us look to your posts and experiences as we travel on. Thank you, Pete.. God be with you and family.
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    Woke Up - Air Hunger

    Pete, Karen, and all- thank you for sharing so much with us as we struggle on this als path. No one else has given as much help about what is coming. God bless you all.
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    Inquiry about Respiratory Onset ALS

    Sorry for your troubles. My husband had no limb issues but he couldn’t breathe and was weakening. Would nod off frequently. It was awful. That was 2 years ago. It took a year to get als diagnosis which seems common. His sleep test showed 135 events per hour. A bipap saved him and still...
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    Woke Up - Air Hunger

    Pete, thank you for sharing the steps on the journey. It really helps all of us who travel there.
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    Woke Up - Air Hunger

    Thank you for continuing to share. So little is known and your detailed journey is helping so many of us. Bless you and family.
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    Be well Tim. My husband is hanging in. His breathing capacity is 30%, and he is on hospice. On...

    Be well Tim. My husband is hanging in. His breathing capacity is 30%, and he is on hospice. On his trilogy 20 hours a day, but he has no pain and can eat and walk short distances with walker. He takes riluzole and protein shakes. Also on lorazepam and morphine as needed, to help breathing...
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    Respiratory Onset- Update

    Thank you, Mrs. Harris. We are in similar place. Yesterday my husband sat outside for first time in months. He enjoyed that a lot. Hope you and your dad have good days together. Thank you for sharing.
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