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I am having a difficult time keeping my feet on my Permobile footrest. my feet get cold and swell a bit during the day so i use the leg lift and recline to help with that, something they recommended to do every hour for 3 minutes. My problem comes when i go back to regular sitting position. my...

Has anyone been a part of the this trail? 1 or 2? AMX0035 in Patients With Amyotrophic Lateral Sclerosis (ALS). I cant seem to find any results posted anywhere. Thank you

I am just wondering if anyone else suffers from this. At my last clinic visit i did bring up to the nurse that i often don't make it to the bathroom in time during the day. It seems i get the sensation that I need to go and then thats it I go. She didn't think it was an ALS thing, other than...

I have found so much helpful information here so I thought this would be the best place to go with this. My second foot is now also dropped, but my toes on that foot curl downwards. This makes walking harder as the toes stub a bit. I am so afraid of falling! Does anyone have this issue? Can...

I will be traveling out of the country with my family in February. This will be my first family trip since my walking, standing has deteriorated. We have rented a Air BNB as I thought this would give me more privacy and space from our boys and my husband could help me with dressing and getting...

Hi everyone. I have not been to my first ALS Clinic visit, its next Thursday July 20th @ Stony Brook University. I am surprised and nervous at how quickly by annoying foot drop and progressed to where I am at the moment. I am still able to drive and can get around as long as I am walking with...

I got my probable ALS diagnosis on May 24th, days before my husband and i would leave on an anniversary trip to California. We have shared this horrible news with some family and our kids. This is just overwhelming and I am so confused as to why we have to wait 6-8 weeks for a followup at the...

HI - hoping I might get some guidance here. I started to have foot slap symptoms in January - went to my GP who did a full blood screen - all normal. She sent me to a neurologist who ordered MRI of lumbar spin - no unusual findings. thoracic spine same. Did an EMG of my left leg which showed...