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  1. Y

    Should one still get genetic testing even w/o family history?

    @Nikki J thank you very much for your patience in addressing my concerns. I wish you and your family the best from the bottom of my heart :) I certainly still have my concerns (1 in 400 being quite surprisingly high...as I understand it's 1 in 250 for men[I'm a male]), and the scary stories...
  2. Y

    Should one still get genetic testing even w/o family history?

    My apologies @Nikki J it seems I've upset you. It's just a very scary thought, b/c of how unpredictable this disease is. I've been trying to exercise regularly of late, but then I'd read online that exercise increases one's chances of getting ALS. So, my sincere apologies, I really didn't mean...
  3. Y

    Should one still get genetic testing even w/o family history?

    Thank you so much for your response :) I don't mean to be an inconvenience, but just to clarify...is it also possible for one to have dysfunctional genes making one predisposed for sporadic ALS, (i.e. being born w/ dysfunctional C9 or SOD1 gene)? In some of the clinical studies, it was stated...
  4. Y

    Should one still get genetic testing even w/o family history?

    Mid 20s student here. I have a very brief question. If you see my post history, you'll see that several years ago I had Brachial Neuritis. My neurologist at the time told me that the disease doesn't: 1. increase risk of ALS 2. Turn into ALS I have since recovered from Brachial Neuritis. What...
  5. Y

    Medical Update +Confirmed atrophy, knee pain, hip grinding, and leg weakness...

    Thank you Karen. I do not have swelling in my knees but have yet to have an X-Ray. Basically my knees, when standing feel like they are gliding over the joints, a little TOO fluid. And yes, the other stuff that I mentioned like the left thigh atrophy. The hip grinding led to some back pain...
  6. Y

    Medical Update +Confirmed atrophy, knee pain, hip grinding, and leg weakness...

    Hello everyone, I went for a checkup about 5 weeks ago. I had knee problems at the time, with buckling in either knee. Though AT THE TIME I did not have any issues with strength, There has been an increase in buckling in both knees (sporadic). My left thigh has atrophy and when I walk I feel...
  7. Y

    Someone Please Explain Cramping to me?

    Shiftkicker, I have some good news for you!! I went to see a NP on campus at my university today (student health services). I got an actual update. All of my reflexes in my legs were 2+ (which is apparently normal), and leg strength was normal. I asked him about spasticity and if it's possible...
  8. Y

    Someone Please Explain Cramping to me?

    Hello everyone, my sincere apologies for being an inconvenience to any of you. I cannot say that I understand what you are going through because that'd be insincere of me, as I am not going through the same thing (as it would seem). But you truly are an amazing and helpful group of people, and I...
  9. Y

    Someone Please Explain Cramping to me?

    Thank you very much Mr. Atsugi. I apologize for being an inconvenience again. It's just been kinda nerve wracking. Hard to get an appt. with my neurologist. Just 2 questions: 1. last night I sat on my dinner table and did that knee tendon reflex thing and my leg shot out. I used a pair of...
  10. Y

    Someone Please Explain Cramping to me?

    I've spoken to a doctor and still was unclear how this cramping phenomenon works with MND patients. Here are my questions, and a brief story of myself (Yes, I know I've been on here before). 1. Are your cramps sudden, and often during periods of inactivity? 2. How long do the cramps last...
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