@Nikki J thank you very much for your patience in addressing my concerns. I wish you and your family the best from the bottom of my heart :)
I certainly still have my concerns (1 in 400 being quite surprisingly high...as I understand it's 1 in 250 for men[I'm a male]), and the scary stories...
My apologies @Nikki J it seems I've upset you. It's just a very scary thought, b/c of how unpredictable this disease is. I've been trying to exercise regularly of late, but then I'd read online that exercise increases one's chances of getting ALS.
So, my sincere apologies, I really didn't mean...
Thank you so much for your response :) I don't mean to be an inconvenience, but just to clarify...is it also possible for one to have dysfunctional genes making one predisposed for sporadic ALS, (i.e. being born w/ dysfunctional C9 or SOD1 gene)?
In some of the clinical studies, it was stated...
Mid 20s student here. I have a very brief question. If you see my post history, you'll see that several years ago I had Brachial Neuritis. My neurologist at the time told me that the disease doesn't:
1. increase risk of ALS
2. Turn into ALS
I have since recovered from Brachial Neuritis.
What...
Thank you Karen. I do not have swelling in my knees but have yet to have an X-Ray. Basically my knees, when standing feel like they are gliding over the joints, a little TOO fluid.
And yes, the other stuff that I mentioned like the left thigh atrophy. The hip grinding led to some back pain...
Hello everyone,
I went for a checkup about 5 weeks ago. I had knee problems at the time, with buckling in either knee. Though AT THE TIME I did not have any issues with strength, There has been an increase in buckling in both knees (sporadic).
My left thigh has atrophy and when I walk I feel...
Shiftkicker, I have some good news for you!! I went to see a NP on campus at my university today (student health services). I got an actual update. All of my reflexes in my legs were 2+ (which is apparently normal), and leg strength was normal. I asked him about spasticity and if it's possible...
Hello everyone, my sincere apologies for being an inconvenience to any of you. I cannot say that I understand what you are going through because that'd be insincere of me, as I am not going through the same thing (as it would seem). But you truly are an amazing and helpful group of people, and I...
Thank you very much Mr. Atsugi. I apologize for being an inconvenience again. It's just been kinda nerve wracking. Hard to get an appt. with my neurologist.
Just 2 questions:
1. last night I sat on my dinner table and did that knee tendon reflex thing and my leg shot out. I used a pair of...
I've spoken to a doctor and still was unclear how this cramping phenomenon works with MND patients. Here are my questions, and a brief story of myself (Yes, I know I've been on here before).
1. Are your cramps sudden, and often during periods of inactivity?
2. How long do the cramps last...