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  • Users: Mydad
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  1. M

    He's gone

    Our hearts are completely broken. We lost my dad 2 weeks ago today. The visitation and service looked beautiful and perfect. Our emotions are every where one minute sad, denial and anger. I HATE ALS!! 7 months and he's gone.
  2. M

    Maybe a month

    Hi everyone, My daughter and I were going to fly out next month to see my dad again, but today my mom said hospice told her we needed to come sooner if we wanted him to know we were there...This is such b***s***!!! They think maybe a month and he will be gone.. I'm so angry and sad!!
  3. M

    nausea/sleeping

    This last week my dad has been sleeping most of the day and as of Sunday he's been getting nauseous after the 3rd syringe when feeding him. The doctor only gave him 3 months, is this what happens during the end stage of the disease? I hadn't read anywhere were they get to where they can no...
  4. M

    Als clinic 3 months

    Hi everyone, My dad went to his 6 MONTH ALS clinic follow up apt last week, and my mom and him were given horrible news. He was unable to even register on the breathing test so they weren't able to see what his FVC percentage was. He is unable to speak now only my mom can understand him, arms...
  5. M

    being admitted

    My dad has been at the hospital all day due to constipation and now nausea. They need a cat scan of his lungs and the doc told my mom it looks like pneminoa, but very little and they are going to start him on antibiotics and do cultures to make sure that's what it is. Those will take a couple of...
  6. M

    constipation

    Hi everyone, I have a question about my dad. He's been unable to go to the bathroom since last Sunday. He has a Peg tube. My mom has been giving him over the counter, prune juice, water, liquid laxatives and has taken him to an urgent care and was given another liquid laxative from that doc and...
  7. M

    Can't swallow food anymore

    This disease is heartbreaking...This past Friday was the last day my dad was able to swallow whole food. It was very rough for him and my mom Saturday accepting the fact that he lost something else. This disease is showing no mercy on him!!! He had trouble breathing last night due to excessive...
  8. M

    Tobi

    Hi everyone, My dad went to the speech therapist yesterday (mom called and got an appt before als clinic) b/c his speech is getting worse day by day. IT BREAKS MY HEART!!! My mom told me that she told the lady that she's glad she called to get him an appt since it will take 6 weeks before the...
  9. M

    peg tube scare

    Hi everyone, Well, yesterday my dad got his Peg tube put in and everything went ok, but was in pain and could only take children's tylenol. Around 5:30 yesterday night my mom had to call an ambulance, because he had a fainting spell. Mom was taking him to the bathroom and he fell over into her...
  10. M

    6-12 months

    Hi all, Well my mom received my dads disability paperwork and what the doctor wrote and it saddened us tremendously. The doctor gave him a prognosis of 6 to 12 months from date of diagnosis to live. The doctor did put in the disability paperwork that it is Bulbar onset, which we knew already...
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