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Thank you Manhattanite...Same to you.

Our hearts are completely broken. We lost my dad 2 weeks ago today. The visitation and service looked beautiful and perfect. Our emotions are every where one minute sad, denial and anger. I HATE ALS!! 7 months and he's gone.

Yes it is!!

Hi everyone, My daughter and I were going to fly out next month to see my dad again, but today my mom said hospice told her we needed to come sooner if we wanted him to know we were there...This is such b***s***!!! They think maybe a month and he will be gone.. I'm so angry and sad!!

Yes hospice has been called and they come a few times a week and no new meds.

This last week my dad has been sleeping most of the day and as of Sunday he's been getting nauseous after the 3rd syringe when feeding him. The doctor only gave him 3 months, is this what happens during the end stage of the disease? I hadn't read anywhere were they get to where they can no...

Thank you so much Tillie! Yes we know how rapid it is and we are blown away by it. I'm sure it was from him not being able to do the lip seal. It is going so fast and they have done everything they can with getting the PEG TUBE and BIPAP, but this disease is not slowing down at all. Thank you...

Hi everyone, My dad went to his 6 MONTH ALS clinic follow up apt last week, and my mom and him were given horrible news. He was unable to even register on the breathing test so they weren't able to see what his FVC percentage was. He is unable to speak now only my mom can understand him, arms...

Hi everyone, Here is a picture of my tattoo. It's on my back by my shoulder blade. He loved it!!