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  1. E

    Female external catheter? (Purewick)

    Quick question on female catheters: I know internal catheters are a no-no typically because of UTI risks. Has anyone ever used a Purewick external catheter? My PALs is in the hospital and they are letting her try one. Is this viable for ALS patients home use?
  2. E

    Update on Acthar Gel Study

    https://alsnewstoday.com/2018/04/20/aan2018-hp-acthar-gel-shows-promise-delay-als-progression/?utm_medium=desktop-push-notification&utm_source=Notifications&utm_campaign=OneSignal
  3. E

    Acthar Gel Trial

    My PALS is currently three months in to the Acthar Gel clinical trial. I know there was some people asking about it earlier, I wanted to post in case anyone had questions. I don't feel like it is reversing anything, but it has really helped her stamina and appetite.
  4. E

    EMG Posting

    I am sorry for the delay in responding here. It has a been a hectic few weeks to say the least. Per my previous thread my wife has been diagnosed with "Probable ALS". Here are the EMG results: This was the initial one done by our local neurologist...
    • Evenrude
    • Thread
    • als breathing clinic diagnosed emg ivig medical muscles neurologist neurology pain speech surgery swallowing symptoms twitching weakness
    • Replies: 4
    • Forum: Newly diagnosed
  5. E

    Wife has "likelihood of ALS" diagnosis

    I want to start by saying what a great group this is for someone like us. I have been reading these boards for awhile and find it remarkable how knowledgeable and caring the users are. For that I thank you. This is my first time posting, and I tend to get a little long winded at times, so...
    • Evenrude
    • Thread
    • age als arm autoimmune back cure diagnosis early emg fasciculations hope mnd muscle neurologist pain pressure scleroderma speech story symptoms tests vent wanted weakness wife wrong
    • Replies: 7
    • Forum: Newly diagnosed
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