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    Female external catheter? (Purewick)

    Thank you for the responses. I'm trying to set up full palative care with an outside agency, but wrestling insurance and some other sources of funding. This has been our reality for the last 6-8 months and I agree is not sustainable. Just looking for any tools that might make it easier...
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    Female external catheter? (Purewick)

    Good question. My typical schedule is: wake up at 6:45 am, get my wife to the barhroom, set in her chair, and a drink. My 20 year old son then takes over while I go to work at 8 am, feeding her, etc.. Then I come home at 12, and take her to the bathroom, lunch, meds, etc. She won't go to the...
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    Female external catheter? (Purewick)

    Quick question on female catheters: I know internal catheters are a no-no typically because of UTI risks. Has anyone ever used a Purewick external catheter? My PALs is in the hospital and they are letting her try one. Is this viable for ALS patients home use?
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    Update on Acthar Gel Study

    https://alsnewstoday.com/2018/04/20/aan2018-hp-acthar-gel-shows-promise-delay-als-progression/?utm_medium=desktop-push-notification&utm_source=Notifications&utm_campaign=OneSignal
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    Acthar Gel Trial

    No worries. I don't think it is a long term solution either. My hope is though that it might be part of a more comprehensive treatment in the future. Perhaps used in conjunction with other drugs. We spent almost a year treating her like it was an autoimmune condition as her inflammation...
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    Acthar Gel Trial

    My PALS is currently three months in to the Acthar Gel clinical trial. I know there was some people asking about it earlier, I wanted to post in case anyone had questions. I don't feel like it is reversing anything, but it has really helped her stamina and appetite.
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    EMG Posting

    All great information. We are not doing surgery, but continuing with PT and OT which seems to really be helping her pain. Some of her strength numbers are up so we are going for another round of IVIG. The neurologist thinks there is enough of a chance that we are trying it again. Thanks...
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    EMG Posting

    I am sorry for the delay in responding here. It has a been a hectic few weeks to say the least. Per my previous thread my wife has been diagnosed with "Probable ALS". Here are the EMG results: This was the initial one done by our local neurologist...
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    Wife has "likelihood of ALS" diagnosis

    I will get those and post them. Thanks!
  10. E

    Wife has "likelihood of ALS" diagnosis

    I do not have the full EMG results available, but here is the synopsis. EMG by local neurologist: "EMG did reveal active and chronic denervative findings throughout both upper extremities with no focal deficits within the thoracic paraspinals." Thank you to everyone for the responses.
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