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Hi everyone, my progression is slow (5 yrs from dx this month!) and I am wanting to consider getting a masters degree so that I could teach very part time. I'm a nurse with a BSN. At the same time, I do not want to incur debt that I will not be able to pay off from my income... I stopped working...

I just got my starter pack of Relyvrio and took the first one today. Well actually half—the taste is so bad. Like bile/vomit 🤢🤢 I’m pretty tough, but man…2 times a day of that, I need some tricks! I used the listerine they sent. I also thought about using a straw? Idk I’m struggling with this...

Hi there, I'm a 37 yo gal with slowly progressing limb onset with second opinion dx 9/2018. I stopped working last year and had no problems with SSDI. I have an LTD policy through my last job. Their definition of disability changes after 2 years...so for me 11/2021. It changes from unable to...

Hey, I’m enrolled in the safety and tollerabilityoral Radicava study...which seems to be going really well by the way 😊 They are doing a second study to determine the best dosage and it sounds like I’ll get rolled over to that study in December. I’m not sure if I’ll get switched to a different...

Hey, I started the oral Radicava trial 2 weeks ago. It’s structured similar to IV infusions...14 on, 14 off then 10 of 14 on and 14 off. Today is my first day without drug and I’m exhausted. It could be a number of things...but I wondered if this is common during the drug free period. Btw I’m...

Just thought I'd say hi. I have MND and have been trying IVIG for the past 8-9 months. We just stopped it....9 months ago I had symptoms/EMG changes in only my right arm...now I have some subtle changes in my back and left hand (although I can't tell that there are any changes). I'm still...

I know most know that the Lunasin trial didn't show significant results, but I thought I'd link a summary poster about the study. Here's the link

I follow Dr. Bedlack on twitter and this popped up yesterday....really interesting. Makes me want to try some of the supplements they mentioned: "The odds of taking curcumin, luteolin, cannabidiol, azathioprine, copper, glutathione, vitamin D, and fish oil were higher for cases than for...

Hi all, thanks for being here. I've recently been diagnosed with Motor Neuron Disease. Specifically I have weakness in my right hand/arm. I'm doing some reading/research here tonight and am wondering about SSDI....my diagnosis is MND so far...not specifically ALS. If I were to file for SSDI...

Hi all, I think like most ppl who have ended up here, I'm thinking that there is a slight possibility I might have ALS. That sounds crazy just saying it.....I'm hoping for a listening ear and maybe a few suggestions or stories etc.....basically support. Thanks in advance. So here's my story...