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Dr. Bedlack does a podcast here and there. It’s not the best quality, but the content is good. 😜 he did a two-part series with other doctors about NFL testing.

@lgelb I've thought about remote nursing! That is totally something I could do without feeling like my dexterity is a liability. My background is in critical care and cardiac stuff and I miss it---mostly, but I am grateful to be a great mother and have more time/peace being medically retired. My...

When I was first diagnosed, I did order a signature stamp. But having other ones seems really personal and cool. Great idea for mailing labels as well. As far as a job--I am thinking that teaching could be something I could do even as my progression advances. I would like to do something that...

Hi everyone, my progression is slow (5 yrs from dx this month!) and I am wanting to consider getting a masters degree so that I could teach very part time. I'm a nurse with a BSN. At the same time, I do not want to incur debt that I will not be able to pay off from my income... I stopped working...

Yep sounds like you’re doing it as they recommend. After reading the longer info from Amylxx, I think I’ll be mindful to not eat a super heavy meal immediately after taking it. Absorption is 30 minutes and they say a high fat meal decreases absorption. So I just won’t chase it with a ribeye 🤪...

Interesting about absorption— Following oral administration of a single dose of RELYVRIO in healthy subjects under fasting conditions, sodium phenylbutyrate reaches a median Tmax of 0.5 hour. Taurursodiol reaches a median Tmax of 4.5 hours. Effect of Food 12.3 Pharmacokinetics Absorption...

While I have done the plug your nose trick—I doubt it would work with Relyvrio. It smells fruity. I’ll try it though. You should try a sip 🤪🤪 it’s like a bitter/bile gag reflex to me. A feeding tube solves that problem 🙃 Kim

🤞 that will be the same for me. Another person suggested something to coat your tongue/tastebuds ie chocolate syrup or pudding, and coffee/creamer after & between. That has helped me the last 2 days.

Thanks Nikki and Lisa-I’ll definitely try those. Hopefully I don’t have GI side effects 🤞 happy there’s another approved drug but definitely some challenges with this one.

I just got my starter pack of Relyvrio and took the first one today. Well actually half—the taste is so bad. Like bile/vomit 🤢🤢 I’m pretty tough, but man…2 times a day of that, I need some tricks! I used the listerine they sent. I also thought about using a straw? Idk I’m struggling with this...