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It's been 5 and a half weeks since Mom passed and it has been such a whirlwind, but I've been thinking about the folks here with such gratitude. (I've typed five summaries of these last weeks and keep deleting them. Suffice it to say that they've been busy and good and sad and maybe I'm...

My mother passed this afternoon after fighting the good fight. I’ll miss her so. Cee

Quick update . Brought hospice in on thursday. We are chasing that awful als cough with atavan and morphine and atropine drops, with constantly-shortening intervals. Awful. Cee

What you posted *really* clicked with me today- thank you! I had a complete meltdown yesterday panicking about life. .. after. Tired, I’m sure, but it gets to one! You gave me a great reminder as I am getting back on track today about the now. Cee

Thanks all for the kind thoughts and support -- fantastic. I'm so glad to hear the good updates this week so far. They were wonderful company while we were back in the hospital -- mom's journey with the feeding tube replacement ended with the flu, and the coughs attributed to sedation got...

Echoing GregK. - the tube for meds and liquids, if not nutrition is such a game changer. The Clinic staff pushed hard on this issue, as they have not done for any other. My PALS has had some difficulty, which we are going through now, but she would stand by the choice to get the tube.

I just slept! In a bed! I am. For this moment. A whole New. Person (the exclamation points had to stop(!!)) The last few days put a horrible holiday season in the deep freeze well into perspective. Saturday I had to kick out an awful caregiver, I often wonder where these people come from...

Best wishes for the new year to all of you. Very tired today (already!). Because I had to send the home aide home on Saturday and my Sunday night person didn’t come after her own mother fell last night and today’s to do list is enormous. Here’s hoping for a good week for all of us! Cee

That’s just the thing guys . Thank you.... and I’m very glad those of you who did get to have fulfilling holidays did so - and I hope that came through my frustration-post. So much happens so fast, yet we lived at of our days just getting through “this minute. “. I guess that’s all I can -and...

I so want to post something but I hate being the downer in the midst of so many wonderful cheerful posts and I do *want* to share good cheer toward those making the most of the holiday, encouragement... but it all ends in a rant. I think i’m Ebenezer Scrooge this season, because if one more...