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  1. E

    Respiratory Weakness Early- Typical Path

    I read in another thread that there are a few on here that had respiratory issues early on and they all seemed to follow the same path, but I haven't found a post that talks about how the disease progressed. My Mom had a FVC of 34% when she was diagnosed last month. Her symptoms started with...
  2. E

    My Mom's Diagnosis- Sporadic Bulbar Onset ALS

    It was sometime last spring when my Mom's voice started sounding hoarse. She discounted it as being sick since she typically loses her voice once a year for a couple weeks when she gets a cold. In June, my best friend got married and she couldn't stop crying. She said she was just tired ,but...
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    • als atrophy bipap brain breathing bulbar bulbar onset clinic crying diagnose diagnosis early friend fvc hope muscle neudexta neurologist onset pain progression pseudobulbar research respiratory sporadic swelling tests thumb
    • Replies: 3
    • Forum: Newly diagnosed
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