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How do most people with ALS get showers and such? Do you have modified bathrooms with special chairs? How are your bathrooms set up? Do you take bed baths? Are you able to Shower with a trach? I've heard conflicting reports on all this so I thought i'd ask people that are in similar...

Praying for you I am sorry to hear about the loss of your mom. I am a caregiver in muncie for a friend with ALS. She goes to Indy to see the specialist. It seems on unfair that some people are diagnosed and live for a long time and others pass away quickly. I will be praying for you and...

Venting I completely understand frustration with our PALS. I love my friend dearly but she drives me absolutely crazy at times. I am with her 24/7 with very little help. I KNOW what I am seeing in terms of her abilities and how she acts around home. When I report this to caring friends...

I am a CALS for a friend. I am seeking info to see what people do that have little to no money to pay for equipment, home modification, wheelchair vans, and hands on help. Yes medicare is available, even waiver programs but those take a long time to access. Ex. Showering... what if there...