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  1. A

    Parkinson's and FALS?

    Hello, I wanted to know about the value of getting genetic testing for my mother, who is 79 and in the final stages of ALS, and for me, a 40 year old father of 2. My maternal grandmother was diagnosed with Parkinson's in Asia at the age of 58. This was in the 1970's. she developed dementia...
    • AnxiousWaiting
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    • als arm cals clinic death dementia diagnosed diagnosis do i have als fals fasciculations father genetic genetic testing kids love medicine problems sod1 stages symptoms testing treatments wanted weakness
    • Replies: 10
    • Forum: Familial ALS (FALS)
  2. A

    FALS -- changing symptoms?

    I hate to post here. My focus in this forum has been on getting advice for my mother, who has ALS. But I'd like to know if I should seek yet another opinion and get another EMG for myself. Also, I'd like to know what peoples' experience has been with quick, brief EMGs. My mother has ALS...
    • AnxiousWaiting
    • Thread
    • advice als anxiety arm atrophy clinic clinical clinics diagnosis early emg emg? fals fasciculations fatigue fvc love mri onset sporadic stages symptoms symptoms? tests trilogy weakness
    • Replies: 3
    • Forum: Could this be ALS?
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    Hospice

    I had posted earlier about denial among family members about my PALS ( 79 year old woman diagnosed in 2013 with ALS). I took her to the clinic yesterday. Her FVC is 36. She has decent strength in her hands and forearms; voice is strong; swallowing is worse. The neurologist recommended...
    • AnxiousWaiting
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    • cals clinic denial diagnosed eating family fatigue fvc hospice hoyer hoyer lift information lift love meals medical neurologist swallowing switch therapy voice
    • Replies: 8
    • Forum: Current caregivers
  4. A

    Family Members in Denial

    All -- My mother is in her late 70's, has no ability to move her legs and has limited use of her arms, which means she has limited strength in her hands and forearms and that's it. Her breathing is okay but below 50 percent. She is only beginning to have trouble swallowing. She lives with...
    • AnxiousWaiting
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    • ability advice anxiety back breathing caretakers denial depression diagnosis family feeding feeding tube fell food hope paralysis swallowing switch trouble swallowing walker wheelchair
    • Replies: 28
    • Forum: Current caregivers
  5. A

    Possible symptoms?

    Before writing further, I want to note that I have read the Common Concern and getting a diagnosis stickies. I hesitated to even describe my symptoms because several would seem to point in contrary directions from ALS. However, I'm going to post here regardless because (1) some symptoms do...
    • AnxiousWaiting
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    • age als als symptoms back burning denervation diagnosis emg fasciculations fingers genetic getting a diagnosis hearing media motor neuron disease neurologist night pain parkinsons pressure sensory symptoms spasms stiffness symptoms symptoms? treatment wrist
    • Replies: 9
    • Forum: Could this be ALS?
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