Search results for query: *

  1. Q

    Feeling guilty

    Hi Rictak, At what stage did your wife stop progressing? My mother has stop moving for about 5 months and her breathing is okay for now but she has the bipap half the day.
  2. Q

    Feeling guilty

    I feel this disease has changed me where I have lost all patience with my mother. I get so frustrated when I see her and I know should not because she is dying. Now I am so easily stressed and I just want to runaway from this situation. Sorry I just feel like venting.
  3. Q

    Feeling guilty

    Hi, My mother has als and she is in her late stages. Is it wrong to think that i want this to be over? I just feel so stressed seeing her like this and I am tired and I just want to continue my life. I have a 5 month old baby and a wife and I feel my life is put hold on. I just feel guilty...
  4. Q

    Frontotemporal Dementia (FTD)

    I been reading a lot of ftd, I was hoping that someone can share personal experience of ftd, the early signs and the later stage with ftd.
  5. Q

    FTD/ALS - c9orf72

    My mother has ALS and has developed FTD. I read online that someone with FTD/ALS usually has the c9orf72 gene? And that gene is due to famillia? Please confirm because it is driving me nuts that I might get ALS in the future. No one else in my family has ALS and this past year I did not worry...
  6. Q

    Bipap

    Hi, I like to know if it’s true that if a person with als who uses a bipap 24/7 will not need invasive ventilation?
  7. Q

    Body stiffness

    She keeps moving because she doesn’t like the stiffness. I bought a temperpudic bed that auto reclines and she still doesn’t use the bed. Sometime I wonder if she developed OCD after being diagnosed with ALS. She also uses a bipap but only has it on for an hr and then she wants to move to the...
  8. Q

    Body stiffness

    Hi, I am a caretaker for my mother and I wanted to ask if it’s normal that my mother can’t stay in one position. For example, every 30 minutes she request to be transferred from her wheelchair and to the recliner. This is throughout the day and night and it’s putting a lot strain on the...
  9. Q

    Itchy throat

    Very small mucus, I always hear her clearing her throat. She is currently using a bipap but not all day but I can try to clean the bipap. I got a call from her general doctor today and he thinks it’s aspiration and recommends a feeding tube. I been trying to avoid talking about a feeding tube...
  10. Q

    Itchy throat

    Hi, my mother has been coughing a lot and I wanted to know if other people experience the same problem. Most of the coughs are from an itchy throat but her symptoms are also progressing rapidly. My mother can’t walk or use her arms and her speech is almost gone. I don’t think the itchy throat...
Back
Top