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  1. BlsdMama

    Accelerated death benefit / life insurance

    I have two policies and both have accelerated death benefit, meaning that I can collect half the policies before I die when I am deemed to have 12 months or less. I've been a very slow progressor, initially diagnosed with PLS, then SPS, then PLS again, and finally 1.5-2 years ago cementing the...
  2. BlsdMama

    Low Air Loss or Alternating Pressure Mattresses

    After much reading on here, I made some calls. The home medical company that ordered my pwc can order InvaCare. I wanted Span America UltraMax. I found a mobility company that can do the UltraMax but he worries that using my bed/mattress purchase on my insurance will affect their willingness...
  3. BlsdMama

    Silly OT - Flooring with a PowerChair?

    It is a silly thing, but I'm wondering about flooring. I recognize it as a luxury to wonder about something so unimportant, but we also don't want to invest in something that won't hold up, kwim? I have wood plank LVT that I LOVE... But it's pulling apart as my wheelchair turns and pivots on...
  4. BlsdMama

    Do you stop dreaming

    About walking and running? Because I’m very over it. I want MY love back and it sucks to wake up and it was just a dream. The whole week has been 💩 and I’m still annoyed with that dream.
  5. BlsdMama

    Wheelchair Servicing, Upkeep, Etc

    Is any type of servicing etc covered by insurance? I need new rear tires and new foam pads at the elbows, as well as covers for the sidearm piece. If none of this is covered, is there a I place to source them? I have the Permobil F5 VS if it matters.
  6. BlsdMama

    Sleep Comfort?

    I’m having no respiratory issues and no anxiety issues. I drop off to sleep easily. However, my spasticity is incredible. About half way through the night - 2 or 3 am, I start to need to adjust my position. Stretching is very painful, I get clones, cramping is minimal. It’s difficult to turn to...
  7. BlsdMama

    Bathroom remodel pics

    Thank you all the tips and suggestions. It will be finished this week. Things we tried to incorporate: Zero entry Sloped floor with linear drain Bidet with remote (Electrical outlet beside toilet) Toilevator Pull down bars on either side of toilet Accessible sink Touch less shampoo/conditioner...
  8. BlsdMama

    Permobil Wheelchair Speed?

    So I got my wheelchair outside for the first time ever!! I thought my wheelchair was supposed to be speedy? 3mph is my top speed? But I pressed a button or something tonight and not it will only go a top speed of 1.5 mph. What did I do and how can I fix it? I took it out tonight and I wondered...
  9. BlsdMama

    Shower heads

    Would this work? Why or why not? ELLO&ALLO Stainless Steel Shower Panel Tower System,LED Rainfall Waterfall Shower Head 6-Function Faucet Rain Massage System with Body Jets, Brushed Nickel (commercial link removed) Right now everything is about me. Seriously, my husband should enjoy the...
  10. BlsdMama

    Pairing a twin XL bed with a hospital bed

    I know in the past that I've seen a picture of someone who was able to pair a twin XL with a hospital bed. It LOOKED like a king. So, the ALS Clinic sent over a hospital bed. I realize it's pure vanity, but dangit, I wanted our beds to LOOK like one bed. Forgive my ridiculousness, but there...
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