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    intense muscle pain?

    Pain When I was first told I had ALS 'they' said there would be no pain,,,,,ha! After a year now I wake up all knotted, my muscles so tight and severe pain. The ALS clinic says now it is common in "this" stage to have pain and put me on morphine. Don't let others tell you how 'you' should feel...
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    Communication Devices

    I dowm load 'Etriloquist unto my PC and I love it campared to the 'LINK' ( I hate the link, no one understands when i use it anyway) So now I was going to spend my savings for summer University, or a laptop. I really need them both but i think I'm leaning toward a laptop. Does anyone out there...
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    New member looking for similar PALS

    Re: Thank you Kim for your last statement, and it is very true. i only wish that those without ALS knew that........... Best Wishes, Suzanna Dx, aug.05 38
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    Stem Cell Research

    Re: Stem Cells Hi all, I wanted to bring up the issue of pain after reading the last comment. I too have magor pain in my legs and some in my hands, but the ALS clinic keeps telling me that ALS doesn't cause physical pain. I have 1 sympothetic doctor that gives me codiene but the others do not...
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    New member looking for similar PALS

    Re: Thanks Les, that helped me as well. I lost my voice too, and started with hand esp, thumb weakness, today they gave me a walker :( but i've just started falling and staggering, but i still wear heels............lol. Yesterday at the ALS clinic they said i'm doing well' what does that mean...
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    New member looking for similar PALS

    Hi Kim, Sorry you are here but welcome, I'm new myself and I've found some of the info. helpful and the support great. I felt I was going crazy until I read others were suffering with the same maladies, phys. and emoutional. I live in Canada I just turned 38, I am a single mom with 1 daughter. I...
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    What is Going On

    Re: I am ambililent on the topic as I have no family,and sole custody of a 13 yr old daughter, very very few friends that i can trust. The father ( who is and was my Dr, at 1 x) disapeared, but i just cant take the what ifs'. Sitting inside, taking tons of xanax waiting for this ghastlty...
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    What is Going On

    Re: thank ypu both for the info,it wasn't of course what i wanted to know but needed too. I have tried to be optimistic , i have tri weekly swims and walks and my palatal lift is put in next week, this will help me swallow, breathe and talk. My QUESTION; in Canada do we have a legal right to...
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    What is Going On

    Re: Dear Dana, Thanks for explaining that for me. If what you wrote is accurate then I have that. As I started slurring, now with impaired speech........however I luck out and got some friends that are Dr's to push to get me a "patatal lift" its a soft plastic peice that will lift up the...
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    Possible Diagnosis

    what the While there is no definitive test for ALS, I too was DX based on the EMG. My neurologist diagbosed 3 people in ! week, whereas he normally does 3 a year! The other 2 were older men60's and me 38 yr old female. He is baffled by this as I asked if there was any coralation w/ demographics...
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