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Hi Everyone, I'm looking for some help here as Radicava is now approved in America. We are very close to having the infusions done for my husband in a Sydney hospital. The only thing holding us back is that we don't have an English written infusion protocol. Does anyone have one from their...

My husband's hands are starting to be affected. He can't lift his fingers much in an upward motion - pushing down is fine still and grip strength is high. Does anyone have recommendations on what mouse to use for the computer to make his life easier?

I was just reading this market report & it makes mention of 3 drugs available on the market for ALS - Radicava, Riluzole & another called Neuronata-R. I've never heard of that one before & it looks to be a Chinese Stem Cell therapy? I wonder why it made it into this report... Amyotrophic...

Hi, I was listening to a totally unrelated podcast yesterday which got me empowered to want to raise awareness in AU/NSW for MND. This morning the NSW govt. gave $2 mil (or more) to cancer research and 2 other diseases as well. My husband made a comment saying "thanks for leaving us out!"...

Hi All, I'm having a really down day and need some help... and probably hugs.. i don't know. Here's a bit about us: My husband had his first symptoms 5 years ago in his calf muscles. Since then it pretty much stayed where it started, calf muscles. His toes are slightly affected, his knees a...

Register here: https://www.neals.org/for-people-with-als-caregivers/educational-webinars/nurown-clinical-development-program-promising-phase-2-results-phase-3-study I've signed up but unfortunately it runs at 3am - 4am for me due to the time difference.. If someone could listen in and let me...

I saw this a few months back: Harvard Scientists: ALS, SMA Cure Found While Schizophrenia Treatment Is Uncertain [Video] : College : University Herald Does anyone know more info about the above?

We had the annual Big freeze at the G yesterday before an AFL match. The federal government matched the donations 1 for 1 & we raised $4.5mil in a day! No Cookies | Herald Sun The Fight MND charity has now raised $20mil over 3 years & funded 8 new research projects in Australia. Can't wait to...

I watched a YouTube video on CRISPR & it sounded amazing but seemed it'll be developed very far in the future. Glad to see it's in the works now...

I've been with my husband for 10 years now (married and unmarried). Prior to his symptoms he slept really well. As soon as his symptoms started he began having very vivid dreams - he talks in his sleep sometimes, he throws punches, rolls of the bed, laughs too. He never used to do this before...