Search results for query: *

I am so sorry, Marnes. I understand the fog. Yes, give yourself time and grace, you have fought an impossible battle. Wishing you comfort from those around you.

Haven‘t been on the site in a while. It will be three years next month. Doesn’t seem possible. Still feel his presence, hope I always will. How blessed I was to have such a wonderful husband for so long. 35 years. How sad I am that he suffered this horrible disease. It makes no sense and...

Jim, wishing you all the best, happy for you. Took me first vacation since my husband passed, with a friend, this month. An active biking trip. My husband would have loved it, we always took active vacations. It was the first time I have actually enjoyed myself in probably 10 years now...

Just came across this Thread. what a good idea. V, I also have a couple trips planned. One is a trip my husband and I had planned to take together before he got sick. I know it will be bitter sweet but my sister convinced me to take it with her. I am nervous about going but know I am lucky...

My husband was so tired of the clinic visits. He felt they didn’t help, just measured his decline. A local ALS support group told us after we had all our procedures done and equipment in place ( I.e., trilogy, feeding tube, etc. meds, etc.) we could go on palliative care and no longer spend...

We had the shower buddy for our shower. It worked great, went right over the lip. I stood outside the shower and used a handheld shower head and long handled soft brush. It also doubled as a commode chair. it saved us from major renovations. It comes with seatbelts/harnassses, etc.

Thank you, good advice

Wishing you all a happy and healthy New Year. Haven't posted in a while. Can’t believe it’s over two years since I lost my husband. Seems like yesterday. I am having a hard time looking forward to anything without him, was hoping it would get easier by now. But I take one day at a time and...

We had hospice palliative care for two and a half years and it was very helpful. My husband especially liked the fact we did not have to go to the clinic anymore, it made a big difference in his quality of life. Dot, I am interested in this medication you mentioned. I have a recently...

So sorry for your loss. I second what Bleue said. The second guessing happens accompanied with guilt and talking with someone will help you see it from an objective prospective. both pals and calls get frustrated, but they are really frustrated with this awful disease, not each other. What...